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garbage can1today was home-assistance day. i hate it. not because it means i have to do household chores like cleaning and washing dishes. i don’t like doing any of those, but it’s ok to do it  together with the home-assistants. i don’t like it because i have to ‘socialize’. i have to ‘be in charge’ and ‘know what needs doing’ and that takes a lot of energy. then there is the ‘crowdedness’ of having ‘strangers’ so close. it is draining. i often have to spend the rest of the day unloading and decompressing.

accepting help is difficult, because although i know that i need the help due to my neurodifference, it has not always been that way. there was a time when i did not know i was neurodifferent, when the difficulties i had with cleaning, washing dishes, going to appointments and such were labeled, ‘laziness’ , ‘slobbiness’ and ‘unwillingness’. all this created a lot of shame. shame that accompany me every day, and most intensely when it is time for home-assistance each monday and friday.

shame is a very odd feeling in some ways, as it makes me both want to hide three feet below the floor and at the same time scream and hit everything around me in fury. it is difficult to participate in the chores when one feels like an earthworm on fire.

earthworm 2

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